MS Society

Archive for the ‘CCSVI’ Category

CCSVI

There is a website on the Internet that has been developed and is operated by a group of people with MS who have received the CCSVI treatment. The Internet address is: http://www.ccsvi-tracking.com/

This site can be used by anyone who has received the CCSVI therapy (or plans to) and who join the site to track how their MS symptoms changed from before and after receiving this treatment. The overall combined results of all who joined are displayed in graphical form showing improvement or deterioration after treatment. These combined results can be viewed by anyone.

The website developers/operators are not doctors. There is no association with any medical organization, nor with the National MS Society (USA), nor with MS Society of Canada. For information purposes only.

The Italian doctor who created the controversial ‘liberation therapy' for multiple sclerosis — trumpeted by some as a possible miracle treatment — is now urging MS patients to wait for more clinical trials.

Dr. Paolo Zamboni's sends out new caution for MS sufferers about the controversial CCSVI treatment.  He procedure which is now the topic of hot debate in the MS community has been under a microscope every since it’s announcement in 2008.  More and more Canadians are becoming medical tourists searching for the treatment outside of Canada.  Now Dr. Zamboni issues warnings on where MS suffers should have the treatment.  

Read the full article here

The Multiple Sclerosis Society of Canada hosted an information session discussing the link between chronic cerebrospinal venous insufficiency (CCSVI) and multiple sclerosis (MS).

Now you can watch and learn directly from the Multiple Sclerosis Society of Canada.  The recent release of 14 videos discusses a range of issues surrounding CCSVI and is now available here on our website.

Watch the videos now.

Add your voice to the conversation about CCSVI, chronic cerebrospinal venous insufficiency, here on our blog.

Thank you for your ongoing collaboration on CCSVI. We appreciate your commitment to providing your stakeholders with timely information. To provide more information on CCSVI, the MS Society will host awebcast on CCSVI on April 7, 2010 from 1:00-3:00 pm Eastern.

The webcast will feature a host panel that will include Yves Savoie, President and CEO of the MS Society of Canada and President, Ontario Division; Dr. Jock Murray, founding Director of the Dalhousie University MS Clinic; and Karen Torrie-Racine, a person living with MS.

You and interested members of your community may register for the webcast. Participants are invited to pre-submit questions to panelists through the registration form  and we will also be accepting questions live during the event via Twitter and Facebook. Participants will receive information on how to ask questions through Twitter and Facebook via email once they have registered and on the registration form.  Additional information about the event is provided in the attached FAQ document, including how individuals who are unable to register online may also register. A French FAQ document will follow.

Chapter offices wishing to participate and gather small groups of clients, volunteers or staff are free to do so. We only ask that you use one line per office and that you register your office online so that we may know the degree of participation across the country.

If you or members of your community are not able to participate in the live webcast in the afternoon of April 7^th, a video of the event will be available for viewing online shortly after. Details on how to view this video will be shared through Chapter E-ssentials as soon as they are available.